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idealey
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Comment on: Re: Disabled College Student, Links to Help

By idealey - on Sep 9, 2008
Posted in everlastinghope 

I'm struggling with the same issue of a lack of resources for adults with autism. I also have an account on http://www.wrongplanet.net and have posted for help there a few times with very little response. There are an increasing number of resources for adults - in other countries - not here in the US. I really want to help change that with the funds from my own business (which is still in question and the reason I found my way here).

I started writing a book several months ago (last year?) titled the Optimist's Wager. It has some information in it about how to "play the odds" as it were in life -- one of the key volumes of research was a book titled the Luck Factor by an English scientist named Richard Wiseman. The good news is that being optimistic and holding out does pay off - the bad news is that all the habits that contribute to good luck are things that are very difficult for people with autism like you and I. But you're obviously already doing some of those things just by being on aidpage and being active, maybe even most of those things.

If you're interested I can make a prerelease copy of the Optimist's Wager available for you to read. But I don't want to push it on you. :)

Good Luck! I hope you find some good leads soon!

everlastinghope
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Comment: So far, no luck as of yet....

By everlastinghope - on Sep 16, 2007... modified on Sep 17, 2007
Posted in everlastinghope 

Note: This aidpage was started as a comment on "Home page of everlastinghope"

So far, no luck as of yet. All the people I have contacted have stated that resources are for family of autistic children, there is not any programs out there for autistic adults. I did find a scholorship, but it would still leave me in a lot of debt.
Please, if anyone can help me out in anyway, I would appreciate it. I am just so desperate and scared.
Thank you to all those who have helped. To those also seeking help, I wish you all the best of luck.
God bless,
Amanda
everlastinghope
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Re: Disabled College Student, Links to Help

By everlastinghope - on Sep 5, 2007... modified on Sep 5, 2007
Posted in everlastinghope 

Wasn't sure how to respond to the fact I visited links someone recommanded. I have gotten in touch with most of the people from those links, but so far, I am told that I should qualify for SSI and to look towards the DVR for help. It looks as though I am doing all I can I am told. Perhaps this is because they really don't have anything for those pursuing higher education? I know that I was diagonsed just at the time autism was getting into the medical dictonary and that there have been a lot of research and help being opened up--unfortently, they are focusing their efforts on children. I seem to be stuck in the spot where if I had been born even five years ealier, I would not have had the resources I did had, but than again, if I had been five years later, a lot more could have been done for me and to help me out.
It makes me very disappointed that those who seem to be decicated to autism are focusing just on children. What about us adults who had parents who made sure doctors did whatever they could, despite not knowing much at all about autism and those of us who were able to benifit from those treatments despite the doctors saying it would never help?
It is as if people are saying, hey you have beaten the odds and are now higher functioning than you were but sorry, we don't know how to deal with you and well, children are more important. Its not fair and I feel bad ranting about it here, but it is frustrating to see the little help that is avaliable or known even from Autism Societies for adults. Who knows, maybe if I didn't have all the other problems, I could be better off, but I don't want to think of that.
I am who I am and my best is turning out to not be good enough. This is terrifing for me since I have a little over a year, less if my disabilities affect me as badly as they did last semester. Last semester, I was stuck in bed for three weeks because of the fibro and I cannot find any help. That is why I came here because all I want is a way where I can afford my medication, doctor bills and some other necissities. Please, if anyone has any more ideas, please share.

everlastinghope
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Disabled College Student Graduating

By everlastinghope - on Sep 1, 2007... modified on Sep 1, 2007
Posted in everlastinghope 

Hi,

I am 21 years old and am gradutation soon from college. I went to college because I really had no choice. I am autistic, bipolar, and have fibromaligia (I have a few more, these are the main ones), so I needed health insurance. With no job experience and no knoweldge of any programs to help me, I took the college route.  Over the course of school, the Fibromyalgia

has gotten to the point where I have to use a cane and have been stuck in bed for two or three weeks in a row. I have only been able to come as far as I am school because of the willingness of the teachers and being able to sumbit homework online.
Now I am about to graduate and am over $13,000 dollars in debt. Even though my disabilities affect me so much that I cannot work more than 20 hours and although that has been documented by more than one doctor/professional, I cannot get government help because according to them, I am not disabled.
I have no idea why even though I have been getting assistance from the Division of Vocational Rehibiliation (DVR), and other disability help, such as disabled housing. Once I leave school, I will not have the finacial support of the DVR.
My parents are barly making it themseleves right now and they cannot help me at all. I have no idea what to do. I want to work so badly, but it is just not physically or mentally possible to do enough to survive, let alone pay off this debt.
Please, I normally don't ask for help, but I am scared to death of what will happen and this debt is just making things worse. If you could help me out at all, I would be enternally grateful. I cannot promise that I can pay money back, but one thing I can promise is that even if I am not able to find an employeer willing to work with me, I will be doing voluntary work, helping others.

gurujai
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By gurujai - on Mar 2, 2007
Posted in gurujai 

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